Firstly, thank you very much for all your words of support and advice further to my last blog – much appreciated.
I feel incredibly fortunate as a meso patient to still be alive after 8 years despite typical meso prognosis, yet it is hard with no clear treatment path.
So throughout the end of last year, we sought a second opinion, researched heaps, had very helpful calls with Meso Uk and the fabulous nurses and received lots of supportive and very informative advice from Ali’s work colleagues.
When the time is right, Immunotherapy is my next course of treatment, but we learnt I can’t access the double drug of Immunotherapy via NHS as I am now classed as ‘2nd line treatment’. Thus, we were fortunate to transfer to a private consultant via my works insurance, met pre-Christmas and talked through pros and cons of Immunotherapy with 1 lung too, or ‘watch & wait’. We proceeded by having a scan now last week to see if there was growth and then we would possibly treat.
We were able to have results this week and hugely relieved to say that both the non small cell lung cancer in my right lung and the meso tumours in the space where my left lung was, are stable or as the specialist said “rock solid”!
We’ve been on this journey for just over 8 years and the emotions continue to be a huge rollercoaster. Right now we’re over the moon– this gives us 3 more months of no tests/appointments – we can plan again!!
As always we’re incredibly grateful to the Meso specialists, the Meso nurses, the NHS, the Christie’s and our fantastic friends and family who keep us all sane and put up with us!! We are also so incredibly proud of our kids who cope so well on this rollercoaster with us, together with navigating teenage life! They love rollercoasters, but this is one you would never chose your kids to ride!!
Best wishes to everyone and thank you!
Dave & Alison xxx
Ps – If you havent yet watched, you can see me on Defenders UK raising awareness. I am on at start, middle & end!
davestaleyblog 
Great news Dave…keep being ‘rock solid’!!
I know the roller coaster all too well and totally get the inability to plan…I am sure we had that conversation 8 years ago! Just plan to have fun and enjoy every minute.
Take care of yourself
Fran xxx
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Fantastic news Dave! You and your Rock Solid Crew, are amazing. Thanking God for this latest good news . Lots of love xxx
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Well done Dave Alison Josh and Erin for all your support. We know you love rollercoasters but this one is a whole new ride but you all do incredibly well looking after each other and your oldies! We are so relieved for you once again and are grateful for all the variety of support you receive! We are right behind you!
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