ln brief it’s good news! My Meso full CT Scan report has not been written up yet, but 2 consultants have reviewed it and can’t see any growth in the 2 mesothelioma nodules on the right lung, so huge relief! We do need to wait about 4weeks for the report to be written up but hoping it remains this way. The plan if all is well, is to have a scan in 6months time which would be big relief to go back to that timescale again.
For the adenocarcinoma, which I’ve had the 5 sessions of radiotherapy (SABR) @ the Christie, we have a follow up on 9th June. I will then need a further scan (likely to be end of July) to see if it’s removed the tumour.
I’ve managed ok with the radiotherapy. Nowhere near as bad as the chemo or surgery & just fatigue & a cough as side effects.
So we are initially relieved. It’s been a horrible wait again & really got to us these last few days. We were both very anxious. Scan anxiety never gets easier, it doesn’t matter how many times you have these appointments, the anxiety builds up thinking what’s next.
In addition, we have Josh who was literally sitting his Business GCSE whilst we were at the hospital awaiting these results. What if we then had to go home & tell the kids awful news and he had his DofE Silver presentation that night & then his Maths GCSE the next morning to focus on?! Everything goes through your mind like this & much more & you just want to protect them from it all. On the flip side, after my initial Meso diagnosis we never knew if I’d be alive whilst he sits his GCSEs so whilst we have the anxiety, we also have a lot to extremely grateful for.
Both Josh & Erin are being very resilient & their humour & antics keep us going. Josh has now finished week 1 of GCSEs & so long as he is fed with treats he seems to be coping well!!!!
Thanks so much for all your help during treatment – lifts, sitting with me at treatment, food gifts, continual supportive messages & all your love & prayers it’s forever much appreciated.
Dave & Ali xx